Ehlers-Danlos Syndrome (EDS) is a group of genetic connective tissue disorders that affect the skin, joints, and blood vessels. People with EDS are often more flexible than normal and can suffer from joint pain and skin fragility. While the condition is rare, it’s important to be aware of the signs so that it can be properly treated.
Recognizing the Signs
EDS can be difficult to diagnose as it can be mistaken for other conditions. It is important to be aware of the signs so that it can be properly treated. Here are 23 signs that you may have grown up with EDS:
Joint Pain: Joint pain is one of the most common signs of EDS. People with EDS may experience joint pain in their hands, feet, elbows, and knees.
Hypermobility: People with EDS are often more flexible than normal. This can be seen in their range of motion and ability to do activities like yoga that require extreme flexibility.
Skin Fragility: People with EDS can have fragile and stretchy skin. This can lead to easy bruising and tearing of the skin.
Poor Wound Healing: People with EDS may have difficulty healing wounds. This can lead to scarring and other skin complications.
Early Onset Arthritis: People with EDS may develop arthritis at a young age. This can cause joint pain and stiffness.
Gastrointestinal Issues: People with EDS may experience digestive issues like constipation, diarrhea, and acid reflux.
Chronic Fatigue: People with EDS may experience chronic fatigue, even when they are getting enough sleep.
Muscle Weakness: People with EDS may experience muscle weakness, even when they are exercising regularly.
Dizziness and Fainting: People with EDS may experience dizziness and fainting, especially when standing up quickly.
Abnormal Posture: People with EDS may have an abnormal posture, such as a swayback or a hunched back.
Scoliosis: People with EDS may experience scoliosis, or an abnormal curving of the spine.
Easy Bruising: People with EDS may experience easy bruising, even when they are not injured.
Recurring Headaches: People with EDS may experience recurring headaches, even when they are not under
Growing up with Ehlers-Danlos Syndrome (EDS) is an often complicated and challenging experience, characterized by a collection of interconnected signs and symptoms that can make everyday life a struggle. Unfortunately, many people who have EDS are misdiagnosed in the years leading up to their official pronouncement of its presence, which can make identifying these characteristics even more difficult than they are naturally.
For those who live with EDS everyday, or those who may just be starting to suspect that they may be suffering from the condition, here are 23 signs you grew up with Ehlers-Danlos Syndrome.
1. Hypermobility: Joints move easily further than expectations for the age and sex of the patient.
2. Joint pain: Painful joint disorders can be experienced as a result.
3. Easy bruising: Unusually easy bruising can result from poor skin quality, thinning, or tissue damage.
4. Fatigue: Patients with EDS have been found to suffer from chronic exhaustion far more than the general population.
5. Stretchy skin: Skin can be particularly elastic and can be easily pinched and rolled.
6. Gaps in between skin: Vacuoles can be seen on the skin in some cases; pit-like hollows left after pinching skin.
7. Slow wound healing: Wound healing can be slower than normal and they are prone to scarring.
8. Tearing of tissue: Include muscles, tendons, and ligaments, a common factor in sufferers.
9. Dehydration: Physical exhaustion, lack of fluid consumption, and prolonged exercise can lead to an increased risk of dehydration in EDS patients.
10. Poor vestibular coordination: An ability to maintain balance can be difficult for many EDS sufferers.
11. Migraine headaches: Unusually high reports of migraine headaches in EDS patients.
12. Invertebratal subluxations: Subluxations can cause back and neck pain, as well as other sympathetic disorders.
13. Autonomicaf unregulated: Unregulated heart rate, bladder or intestine control, temperature change, etc.
14. Autoimmune disorders: A predisposition to autoimmune disorders can be common in EDS patients.
15. Allergies: Exaggerated immune response to food, environmental, and other allergens can occur in some patients.
16. Chronic dehydration: Dehydration can be a significant issue with those who suffer from EDS.
17. Scarring: Due to slow wound healing, many EDS patients may experience significant scarring instead.
18. Poor sleep quality: Unusually prominent sleep issues are not uncommon for those living with EDS.
19. Stress intensification: Stress can intensify some symptoms of EDS, and it can also trigger others.
20. Reduced fibrous tissue: Lessened fascial and collagen tissue can be a major problem in sufferers of EDS.
21. Spontaneous dislocations: Extremely loose joints can make movements unpredictable, causing dislocations to occur without warning.
22. Dimpled/downelying skin: Unusually docile environments of the skin can be particularly concerning in patients with EDS.
23. Osteoarthritis: Underlying tissue weakness can lead to iterative joint damage, causing arthritis to be particularly common in EDS sufferers.
If you have been experiencing any of the above symptoms, then you may want to consult with a doctor to see if you have EDS and to discuss your diagnosis and treatment options. By being aware of the signs of EDS, you can take steps to proactively manage your health and make life a little easier.